The first six international comparision papers on the second InSCI survey with over 15'000 participants are published in the Archives of Physical Medicine and Rehabiliation, issue April 2026.
Publications and highlights
- Methods & Epidemiology: Methodology and Epidemiologic Data of the Second InSCI Survey
Gross-Hemmi MH, Brach M, Popa D, Setiono S, Singhal B, Sunnerhagen KS, InSCI, Stucki G.
Methodology and Epidemiologic Data of the Second International Spinal Cord Injury (InSCI) Community Survey.
Arch Phys Med Rehabil. 2025 Oct https://doi.org/10.1016/j.apmr.2025.09.030
- Secondary Health Conditions: High global burden of pain, depression, and other conditions
Strøm V, Weidner N, Sadowsky C, Hla KM, Uddin T, Rapidi CA, InSCI, Sabariego C.
Self-reported Secondary Health Conditions in Relation to Age and Time Living With Spinal Cord Injury: Results From the Second International Spinal Cord Injury Community Survey.
Arch Phys Med Rehabil. 2025 Nov https://doi.org/10.1016/j.apmr.2025.11.006 (open access)
- Health Services: Lifelong, complex care needs with wide cross-country variation
Pacheco Barzallo D, Baricich A, Grisales MP, Yousefzadeh-Chabok S, Chan E, Otom A, InSCI, Hasnan N.
Health Services Needs and Utilization of Persons Aging With SCI: A Cross-Country Comparison.
Arch Phys Med Rehabil. 2025 Oct https://doi.org/10.1016/j.apmr.2025.10.003 (open access)
- Employment & Participation: Only 33% employed on average, with strong policy-related variation
Escorpizo R, Osterthun R, Hiekkala S, Kim O, Avellanet M, Berna L, Arsh A, InSCI, Leiulfsrud AS.
People With Spinal Cord Injury/Disease in the Labor Market: A Comparative Outlook.
Arch Phys Med Rehabil. 2025 Nov https://doi.org/10.1016/j.apmr.2025.11.005
- Quality of Life & Health Systems: Marked differences linked to policies and resources
Noonan VK, Kovindha A, Perrouin-Verbe B, Corrales ACY, Hajjioui A, Joseph C, Arora M, InSCI, Barzallo DP.
Health-Related Quality of Life and Health Care Systems in People With Spinal Cord Injury: A Cross-Country Comparison From the Second InSCI Community Survey.
Arch Phys Med Rehabil. 2025 Nov https://doi.org/10.1016/j.apmr.2025.11.007
- From evidence to action: InSCI is embedded in the Learning Health System for SCI, supporting countries to use evidence to strengthen policy, services, and care. The next phase focuses on implementation—translating findings into national SCI/D strategies, strengthening rehabilitation pathways, and closing service gaps. Long-term impact will depend on sustainable governance and funding to enable continued data collection, cross-country learning, and evidence-based action.
Bickenbach J, Chhabra HS, Erhan B, Middleton JW, Stucki G; InSCI; Engkasan J.
International Spinal Cord Injury Survey: The Way Forward.
Arch Phys Med Rehabil. 2025 Nov https://doi.org/10.1016/j.apmr.2025.11.002
