International Publications

International publications arising from the InSCI community survey typically involve comparative research using datasets from at least two countries, allowing for cross-regional and international analyses.

The research covered in these publications spans a broad range of critical topics, including:

Work and Participation: Comparative studies on employment outcomes, social integration, and participation in community and societal life across different countries.
Medicine & Psychology: Investigations into the medical and psychosocial aspects of SCI, including mental health, quality of life, and secondary health problems.
Health Services Research: Analyses of healthcare access, quality of care, and the effectiveness of SCI services across diverse healthcare systems.
Metric Papers: Research focused on the development and validation of measurement tools and functioning scores.
Cohort Studies: Description of the InSCI cohort and epidemiological figures.

2025

Leiulfsrud, A. S., Ellinggard, K., Post, M. W., Arora, M., & Leiulfsrud, H. (2025). Experienced inclusion and recognition amongst people with a spinal cord injury: A comparative study in Norway, The Netherlands, and Australia. PlosOne , 2025. DOI: https://doi.org/10.1371/journal.pone.0306231

2024

Ana Oña, Urban Schwegler, Annelie Leiulfsrud, Ken Kouda, Andrea Boekel, and Diana Pacheco. (2024). Disability, Unemployment, and Inequality: A Cross-Country Comparison of the Situation of Persons With Spinal Cord Injury. International Journal of Social Determinants of Health and Health Services https://doi.org/10.1177/275519382412357

Pratchayapon Kammuang-lue, Sintip Pattanakuhar, Julia Patrick Engkasan, Luh K Wahyuni, Aishah Ahmad Fauzi, Chayaporn Chotiyarnwong, Apichana Kovindha. The association between health service systems and pressure injury problems of individuals with chronic spinal cord injury in Malaysia, Indonesia, and Thailand: a cross-sectional study. (2024). American Journal of Physical Medicine & Rehabilitation . epub ahead of print. DOI: 10.1097/PHM.0000000000002437

Leiulfsrud, A. S., Ellinggard, K. B., Post, M. W., Joseph, C., & Leiulfsrud, H. (2024). Disability and social trust: a comparison of people with a spinal cord injury and the general population in Norway, the Netherlands, and South-Africa. Social Theory & Health , 1-20. DOI: 10.1057/s41285-024-00205-6

Bychkovska, O., Pattanakuhar, S., Arora, M., Postma, K., Strøm, V., Joseph, C., ... & Gemperli, A. (2024). Gender differences in patient experience among persons with spinal cord injury: a comparison across 22 countries. Disability and Health Journal , 101642. DOI: 10.1016/j.dhjo.2024.101642

2023

Sabariego, C., Ehrmann, C., Bickenbach, J., Pacheco Barzallo, D., Schedin Leiulfsrud, A., Strøm, V., ... & Stucki, G. (2023). Ageing, functioning patterns and their environmental determinants in the spinal cord injury (SCI) population: A comparative analysis across eleven European countries implementing the International Spinal Cord Injury Community Survey. Plos one , 18 (4), e0284420. https://doi.org/10.1371/journal.pone.0284420

Bychkovska, O., Tederko, P., Strøm, V., Juocevicius, A., & Gemperli, A. (2023). Does stronger primary care improve access to health services for persons with spinal cord injury? Evidence from eleven European countries. The Journal of Spinal Cord Medicine , 1-11. https://doi.org/10.1080/10790268.2023.2188390

Oña, A., Athanasios, K., Tederko, P., Escorpizo, R., Arora, M., Sturm, C., ... & Barzallo, D. P. (2023). Unmet healthcare needs and health inequalities in people with spinal cord injury: a direct regression inequality decomposition. International Journal for Equity in Health , 22 (1), 56. https://doi.org/10.1186/s12939-023-01848-z

Pattanakuhar, S., Ahmedy, F., Setiono, S., Engkasan, J. P., Strøm, V., & Kovindha, A. (2023). Impacts of bladder managements and urinary complications on quality of life: cross-sectional perspectives of persons with spinal cord injury living in Malaysia, Indonesia, and Thailand. American journal of physical medicine & rehabilitation , 102 (3), 214-221. DOI: 10.1097/PHM.0000000000002066

Tasiemski, T., Kujawa, J., Tederko, P., Rubinelli, S., Middleton, J. W., Craig, A., & Post, M. W. (2023). Relationship between secondary health conditions and life satisfaction in persons with spinal cord injury: study across twenty-one countries. Quality of Life Research , 1-9. https://doi.org/10.1007/s11136-023-03376-3

Bychkovska, O., Strøm, V., Tederko, P., Engkasan, J. P., Juocevičius, A., Battistella, L. R., ... & Gemperli, A. (2023). Health System’s Role in Facilitating Health Service Access among Persons with Spinal Cord Injury across 22 Countries. International Journal of Environmental Research and Public Health , 20 (11), 6056. DOI: 10.3390/ijerph20116056

Escorpizo, R., Naud, S., Post, M. W., Schwegler, U., Engkasan, J., Halvorsen, A., ... & Sadowsky, C. (2023). Relationship between employment and quality of life and self-perceived health in people with spinal cord injury: an international comparative study based on the InSCI Community Survey. Spinal Cord , 1-7. DOI: 10.1038/s41393-023-00953-8

2022

Bychkovska O, Tederko P, Engkasan JP, Hajjioui A, Gemperli A. Healthcare service utilization patterns and patient experience in persons with spinal cord injury: a comparison across 22 countries. BMC Health Serv Res. 2022 Jun 7;22(1):755. doi: 10.1186/s12913-022-07844-3. PMID: 35672727; PMCID: PMC9175375.

Fekete C, Tough H, Leiulfsrud AS, Postma K, Bökel A, Tederko P, Reinhardt JD. Socioeconomic Status, the Countries' Socioeconomic Development and Mental Health: Observational Evidence for Persons with Spinal Cord Injury from 22 Countries. Int J Public Health. 2022 Nov 30;67:1604673. doi: 10.3389/ijph.2022.1604673. PMID: 36531606; PMCID: PMC9747630.

Oña A, Athanasios K, Tederko P, et al. To what extent do unmet healthcare needs explain health inequalities? A direct regression inequality decomposition. Research Square; 2022. DOI: 10.21203/rs.3.rs-1473829/v1.

Strøm V, Månum G, Arora M, Joseph C, Kyriakides A, Le Fort M, Osterthun R, Perrouin-Verbe B, Postma K, Middleton J. Physical Health Conditions in Persons with Spinal Cord Injury Across 21 Countries Worldwide. J Rehabil Med. 2022 Jun 29;54:jrm00302. doi: 10.2340/jrm.v54.2040. PMID: 35678293; PMCID: PMC9272839.

2021

Fekete C, Tough H, Arora M, Hasnan N, Joseph C, Popa D, Strom V, Middleton J. Are Social Relationships an Underestimated Resource for Mental Health in Persons Experiencing Physical Disability? Observational Evidence From 22 Countries. Int J Public Health. 2021 Apr 16;66:619823. doi: 10.3389/ijph.2021.619823. PMID: 34744581; PMCID: PMC8565297.

Fekete C, Reinhardt JD, Arora M, Patrick Engkasan J, Gross-Hemmi M, Kyriakides A, Le Fort M, Tough H. Socioeconomic status and social relationships in persons with spinal cord injury from 22 countries: Does the countries' socioeconomic development moderate associations? PLoS One. 2021 Aug 13;16(8):e0255448. doi: 10.1371/journal.pone.0255448. PMID: 34388150; PMCID: PMC8362947.

Oña A, Strøm V, Lee BS, Le Fort M, Middleton J, Gutenbrunner C, Pacheco Barzallo D. Health inequalities and income for people with spinal cord injury. A comparison between and within countries. SSM Popul Health. 2021 Jun 26;15:100854. doi: 10.1016/j.ssmph.2021.100854. PMID: 34258374; PMCID: PMC8259327.

Tasiemski T, Kujawa J, Tederko P, Rubinelli S, Middleton JW, Craig A, Post MWM. Comparison of Life Satisfaction in Persons With Spinal Cord Injury Living in 22 Countries With Different Economic Status. Arch Phys Med Rehabil. 2022 Jul;103(7):1285-1293. doi: 10.1016/j.apmr.2021.11.008. Epub 2021 Dec 17. PMID: 34922932.

Pacheco Barzallo D, Oña A, Gemperli A. Unmet health care needs and inequality: A cross-country comparison of the situation of people with spinal cord injury. Health Serv Res. 2021 Dec;56 Suppl 3(Suppl 3):1429-1440. doi: 10.1111/1475-6773.13738. Epub 2021 Aug 12. PMID: 34386981; PMCID: PMC8579205.

Tederko P, Middleton J, Mycielski J, Joseph C, Pagliacci MC, Rapidi CA, Tarnacka B, Kujawa J. Relationship Between Level of Economic Development, Age, and Etiology of Spinal Cord Injury: A Cross-Sectional Survey From 22 Countries. Arch Phys Med Rehabil. 2021 Oct;102(10):1947-1958.e37. doi: 10.1016/j.apmr.2021.04.024. Epub 2021 Jun 11. PMID: 34119460.

2020

Fekete C, Brach M, Ehrmann C, Post MWM; InSCI, Stucki G. Cohort Profile of the International Spinal Cord Injury Community Survey Implemented in 22 Countries. Arch Phys Med Rehabil. 2020 Dec;101(12):2103-2111. doi: 10.1016/j.apmr.2020.01.022. Epub 2020 Jun 10. PMID: 32533933.

Ehrmann C, Reinhardt JD, Joseph C, Hasnan N, Perrouin-Verbe B, Tederko P, Zampolini M; InSCI, Stucki G. Describing Functioning in People Living With Spinal Cord Injury Across 22 Countries: A Graphical Modeling Approach. Arch Phys Med Rehabil. 2020 Dec;101(12):2112-2143. doi: 10.1016/j.apmr.2020.09.374. Epub 2020 Sep 25. Erratum in: Arch Phys Med Rehabil. 2021 Apr;102(4):799. PMID: 32980339.

Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevičius A, Popa D, Wahyuni LK; InSCI, Strøm V. Quality of Life and the Health System: A 22-Country Comparison of the Situation of People With Spinal Cord Injury. Arch Phys Med Rehabil. 2020 Dec;101(12):2167-2176. doi: 10.1016/j.apmr.2020.04.030. Epub 2020 Jun 10. PMID: 32533934.

Post MW, Reinhardt JD, Avellanet M, Escorpizo R, Engkasan JP, Schwegler U; InSCI, Leiulfsrud AS. Employment Among People With Spinal Cord Injury in 22 Countries Across the World: Results From the International Spinal Cord Injury Community Survey. Arch Phys Med Rehabil. 2020 Dec;101(12):2157-2166. doi: 10.1016/j.apmr.2020.05.027. Epub 2020 Jul 13. PMID: 32673653.

Reinhardt JD, Middleton J, Bökel A, Kovindha A, Kyriakides A, Hajjioui A, Kouda K; InSCI, Kujawa J. Environmental Barriers Experienced by People With Spinal Cord Injury Across 22 Countries: Results From a Cross-Sectional Survey. Arch Phys Med Rehabil. 2020 Dec;101(12):2144-2156. doi: 10.1016/j.apmr.2020.04.027. Epub 2020 Jun 2. Erratum in: Arch Phys Med Rehabil. 2021 Nov;102(11):2273. PMID: 32502565.

Bickenbach J, Batistella L, Gutenbrunner C, Middleton J, Post MW; InSCI, Stucki G. The International Spinal Cord Injury Survey: The Way Forward. Arch Phys Med Rehabil. 2020 Dec;101(12):2227-2232. doi: 10.1016/j.apmr.2020.06.011. Epub 2020 Jul 12. PMID: 32663478.

Fekete C, Arora M, Reinhardt JD, Gross-Hemmi M, Kyriakides A, Le Fort M, Patrick Engkasan J, Tough H. Partnership Status and Living Situation in Persons Experiencing Physical Disability in 22 Countries: Are There Patterns According to Individual and Country-Level Characteristics? Int J Environ Res Public Health. 2020 Sep 24;17(19):7002. doi: 10.3390/ijerph17197002. PMID: 32987936; PMCID: PMC7578936.

2017

Gross-Hemmi MH, Post MW, Ehrmann C, Fekete C, Hasnan N, Middleton JW, Reinhardt JD, Strøm V, Stucki G; International Spinal Cord Injury Community Survey (InSCI) Group. Study Protocol of the International Spinal Cord Injury (InSCI) Community Survey. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S23-S34. doi: 10.1097/PHM.0000000000000647. PMID: 28059876.

Fekete C, Post MW, Bickenbach J, Middleton J, Prodinger B, Selb M, Stucki G; International Spinal Cord Injury Community Survey (InSCI) group. A Structured Approach to Capture the Lived Experience of Spinal Cord Injury: Data Model and Questionnaire of the International Spinal Cord Injury Community Survey. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S5-S16. doi: 10.1097/PHM.0000000000000622. PMID: 28059874.

Stucki G, Bickenbach J. The Implementation Challenge and the Learning Health System for SCI Initiative. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S55-S60. doi: 10.1097/PHM.0000000000000672. PMID: 28059879.

Rubinelli S, von Groote PM. Stakeholder Dialogue as Deliberation for Decision Making in Health Policy and Systems: The Approach from Argumentation Theory. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S17-S22. doi: 10.1097/PHM.0000000000000635. PMID: 28059875.

Gutenbrunner C, Blumenthal M, Geng V, Egen C. Rehabilitation Services Provision and Payment. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S35-S40. doi: 10.1097/PHM.0000000000000668. PMID: 28059877.

Pacheco D, Gross-Hemmi MH. The Cross-Cultural Societal Response to SCI: Health and Related Systems. Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S41-S54. doi: 10.1097/PHM.0000000000000664. PMID: 28059878.